This just breaks my heart as the daughter of Robert Horry, Ashlyn Horry passed away today at the age of 17. She had been fighting a very rare disease since she was born. It is something that Robert Horry spoke about often and said she was his hero. She was a true fighter and an example of what being a warrior is all about.
Our thoughts and prayers go out to the Horry family and friends. I can not imagine the pain they are in right now.
Here is a brief description of the disease Ashlyn was fighting.
Ashlyn Horry. Born April 2, 1994, with severe respiratory issues and a host of other complications requiring a six month stay in Texas Childrens Hospital’s Neonatal Intensive Care Unit, she has endured. After numerous tests, multiple surgeries and several near death experiences, Genetic Physicians found that she had a rare chromosome abnormality; partial deletion of her number 1 chromosome (short arm). Not much information was known at the time to have any frame of reference or “road map” to go by. In fact, the abnormality didn’t even have a name. In just recent years, a name has been attached to this chromosome abnormality. It is now known as 1p36 Deletion Syndrome.
Please make a donation to the Ashlyn Horry Foundation to help fight this deadly disease.